What's That Growing In Your Head?

For various reason, none of them having to do with common sense or regular health care checks I went to a neuro-ophthalmologist so that I could get an official letter which says in short "She really, really, really can't see worth a damn. She has not been faking for 54 years so cut her a break."

I HATE going to the eye doctor. I have a rare genetic condition so they always get all excited, put me through a multitude of test to prove yet again that my vision is laughable, charge me an arm and a leg, demand follow-ups and gleefully rub their hands together in a Simon Legree sort of way while they say "Whoa Nelly, your eyes are horrible and there is no fix. Sucks to be you!" If I hadn't needed the letter for work I would have happily gone on, staying in familiar places and firmly holding on to my seeing eye people for the next forty or so years.

I arrived begrudgingly, agreed to a test that maps one's vision with a curt nod, sat in a horribly uncomfortable chair with my chin in a cup and my head in their machine and waited for tiny lights to start zooming around, clicker in hand. When you see a light, you click the button. This is simple.

The woman helping me was sweet and quiet for a minute and then asked did I not see any at all. 

"What? What? You started?"
"Just click the button when you see the light flash."

Crap. No lights, I stare straight ahead willing the little points of light to appear. As if by magic three or four bright flashes appear in a row, top left, click click click. Then, nothing.... 

Quick! three or four bright flashes appear in a row, bottom right! Click click click.... I do an extra click just in case I miss counted.

Nothing! I can't cheat since I do not really know where or when the flashes will appear, but I would, if I could. Test over. The lady is now smiling at me with a touch of pity. 

"You did real well."

Liar! I want to beg to do it again. I stare balefully at the machine, sitting there like a piece of modern sculpture, taunting me. I want to cry.

The last time I did this test the map it made of my eyes looked like a target, circles of no vision radiating out like waves from the center. This time it looks like a butterfly, with the wings and body having no vision at all. It looked bad, and dark and absolutely terrifying to me.

My vision sort of resembles this Rorschach ink blot

The doctor, wasting no time, not being gleeful and not rubbing his hands together says, "Yep, you definitely have  genetic neuro-scatomatas. HOWEVER..." 

I feel myself shrinking.

"Usually when we see this 'tubing' it is caused by something pressing against the optic nerves"

I shrink more. I feel like I am six.

"Usually an enlargement of the Pituitary glad. Maybe surgery is an option. We can't fix the genetic defect (No shit Sherlock) but sometimes reducing the pressure can help to return the vision to it's pre-swelling state."

I feel like a toddler walking out, lost and alone, looking for my sister who has driven me here. Everybody in the waiting room is acting like nothing has changed. Everybody in the waiting room is reading, toe tapping, finger drumming, waiting to get their new prescription and get in their cars and drive off into their normal life. 

The right side of my brain is saying "This is bad, this is serious, this is NOT GOOD" The left side of my brain is saying "Oh look! A butterfly! (Here the left brain shrieks and makes an about face. I suddenly do not like the looks of butterflies) I want a cookie, maybe a couple of dozen. Isn't the sun nice! What shall we cook for dinner? I like red, it is such a pretty color. That machine has a nice rhythm. Doodly doo doo doo doo doo."

By the time I got home my right brain was speaking in a much firmer tone of voice... "THIS IS BAD, THIS IS SERIOUS, THIS IS NOT GOOD!" and the left side had retreated into a corner, fingers in ears saying "LA LA LA LA I can't hear you" but had given up the good fight. I turned to Dr. Google and looked up swelling in the pituitary.

I read a lot of articles, spending roughly three hours on different sites but the end result was always the same. TUMOR TUMOR TUMOR. Oh crap and eff me.

The good news? Tumors in the pituitary are self contained, not malignant. Bad news they can only be treated by radiation or surgery, and the underlying cause can be treated, sometimes, depending on what it is. I was not a happy camper.

I am having two MRIs this Monday, one with contrast, one without. I am hoping (Yes, with my left brain) that this has all been a giant scare and that the next time I take the test from hell I will once again have lovely targets of blindness and the evil tubing will be gone. Wish me luck!

After the Storm

Clouds, yellow green and ominous cover the sky in its entirety. Five columns of black descend destroying everything in their path. They are thick, heavy, solid, dark and bent on destruction. I watch them, rooted in place and horrified by the damage they wrought. As the biggest, the blackest, the most solid bears down directly on me I wake with a start; my heartbeat shakes the entire bed. My breathing is shallow and I feel frozen to the bone even though I am well covered.

I turn toward the rock that is my husband, wrapping myself against his warm back, tucking myself into the curve created by his bent knees. As he reaches in his sleep and pulls me nearer still I begin to relax. Once the pounding in my chest and the blood rushing in my ears subsides a bit I can hear the steady loud chug-chug of the air conditioner a scant three feet away. I hear the noise of people that wander the darkness outside the window with its stiff bright orange, yellow and green curtains. The heavy covering for the old mattress a thousand people have slept on is folded and wrinkled and uncomfortable under my skin. The pillow is flat and not soft, not welcoming as a pillow should be. Instead it is a harder by the minute brick on which my head lays. Tear soaked and smelling like someone else’s laundry it is the pillow that finally drives me from the warmth of the bed and into the cold white tile of the hotel bathroom.

I realize I haven’t got any clothes except those I had on when the tornado destroyed my home, turning me into a weather refugee. The Red Cross had given us coffee and dinner and called around to hotels for me. A $75 dollar gift certificate redeemable just about anywhere had been pressed into my hand but I was too distraught and could literally not let go of my husband to go shopping. I feared if I did he would blow away, dancing in the sky waving to me as he rotated and flew off just as my wedding dress, my pajamas, my winter coat had.  

I drew a hot bath, scalding water, pouring the teeny bottle of body wash in it to make it feels smooth on my skin. I rolled up a towel and stuck it under my neck as a make shift pillow and sunk chin deep into the tub. I couldn’t hear the rattling AC unit in here, nor the whores outside, nor my husband snoring, sleeping well cocooned in the wrinkled and bleach smelling bed. I closed my eyes and began to drift off, again and again, each time being jerked awake by the wind, the malevolent wind. After the water cooled I rose, pulled on  my dirty clothes and slipped outside for a smoke.